Monday, October 26, 2009

Update - Day 172

We met with the doctors to get the result of Barb's biopsy. Unfortunately, it was bad news. The Leukemia is still there. Naturally, this is a very sad time for us, because now the available options are not as attractive:

--Do nothing and the remaining time will be short.

--Take a high risk (relatively low success rate) "mis-matched" bone marrow transplant using the stem cells from one of Barb's partially matched sisters. This is a treatment that has no recourse -- if it does not go well. And, she could spend the rest of her time in the hospital.

--Take unproven, but hopeful, experimental Chemo treatments which would allow Barb to stay home during the treatment ... if she is able to tolerate the drugs and avoid infections.

Barb has decided to fight on and participate in a clinical trial with a new combination of Chemo drugs. The drugs have been effective in treating other types of blood cancers, and in the laboratory have been very effective with AML Leukemia. However, testing in AML patients has just begun. The side effects should be moderate, and perhaps the treatment will work for her. If not, she will probably be able to stay home, and there are still other clinical trials available.

We continue to hope for the best that she can get into remission and have a "matched" bone marrow transplant with her brother Bob. However, we are also being realistic and are planning accordingly. We are trying to make every day the best it can be. Yesterday, on the way home from the out-patient clinic, we stopped off for a Sunday movie matinee. It was a nice break.

8 comments:

  1. So very sorry to hear the news but the game isn't over yet and there have been many miracles with cancer treatment...........so hang in Barb and I will wait for the GOOD news. My LOVE and PRAYERS are with you and yours.
    Lovingly,
    Rita

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  2. Please know that we love you so very much and are thinking about you constantly. We remain steadfast and hopeful, looking for the best, with overflowing love and prayers to surround all and each of you.
    Love,
    Rachel

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  3. The 2 of you have been on my heart and mind all weekend and I share your sadness. But we are all in your corner, pulling for you, praying for you and loving you. Faye

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  4. I continue to pray for you Barb. I have strong faith and belief that God hears and answers prayers. I'm believing on
    Proverbs Chap.3: Verse 1 - 8 for you....also
    Prov. 16:24. Much love,
    Gary

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  5. Praying for you guys...the motto I claim everyday is...IT IS ONE DAY AT A TIME!!! Sending lots of hugs your way!!! Glad to hear that you got to go to a movie!!!

    Hugs from St. Louis,

    Kristin
    (KU teammate to Jeanine)

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  6. Barb and Darrell, We are saddened by the latest news but will remain with you in prayer and spirit and hope. We love you and your wonderful family and will try to keep up with your great example of love and determination. All our prayers and blessings and love, Cindy and Chuck

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  7. Dearest Barb & Darrell, I am so sad to hear this news,as is everyone who loves you. You both are so brave. You have always set such a good example in all you do! You are my HEROES !! I will continue to pray and hope for good results. Much love, xoxo Dianne

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  8. Dear Barb and Darrell~~As I would expect, you are continuing to do all you can do each day. Thinking of you all and always keep you in my prayers. I'm glad you are still home and comfy with all the lights on this Wednesday morning. Love, Pam

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